Situations

Making an advance care plan

Advance care planning means thinking and talking about how you want to be cared for in the final months of your life, and writing it down, in case a time comes when you cannot take part in decisions yourself. It can include an advance statement of your wishes, an advance decision to refuse treatment, and a lasting power of attorney. (NHS)

This page follows NHS guidance for England. If you live in Scotland, Wales or Northern Ireland, check with the care team, because the rules and forms can be different.

Signposting, not medical adviceSources checked 28 September 2026

Why plan ahead?

It can help you get the care you want, and make things easier for your partner or family. If they already know where you would like to be cared for, whether you would want to go into hospital or be resuscitated, and any treatment you want to refuse, they are spared making hard decisions later without knowing what you would have wanted. (NHS)

Ways to start

  • Start the conversation with your partner, family, carers and health professionals. (NHS)
  • Explore your options, such as where you want to be cared for. (NHS)
  • Write your wishes down. This is called an advance care plan, and it may include an advance statement. (NHS)
  • If there is treatment you would not want, make an advance decision to refuse treatment. (NHS)
  • Choose someone to make decisions for you if you cannot, by making a lasting power of attorney. (NHS)

Advance statement

An advance statement sets down your preferences, wishes, beliefs and values about your future care. It can cover anything, such as where you want to be cared for, how your religious or spiritual beliefs should be reflected, or who will look after your dog. (NHS)

It is not legally binding, but anyone making decisions about your care must take it into account. You do not have to sign it, but a signature makes clear the wishes are yours. Keep it somewhere safe, tell people where it is, and you can keep a copy in your medical notes. (NHS)

Advance decision to refuse treatment

An advance decision, sometimes called a living will, is a decision you make now to refuse a specific treatment in the future. The treatments must be named, and you should be clear about the circumstances. (NHS)

It is legally binding if it complies with the Mental Capacity Act, is valid and applies to the situation. You must be 18 or over and have had the capacity to make the decision. (NHS)

To refuse life-sustaining treatment, such as CPR, the decision must be written down, signed by you and by a witness, and say that it applies even if your life is at risk. (NHS)

If you need help now

If someone's life is in danger, call 999. If you need medical help urgently and are not sure what to do, call 111 (NHS 111 in England and Wales, NHS 24 in Scotland). In Northern Ireland, nidirect explains where to get urgent help.

If someone has just died
If the death was expected, at home
Contact their GP. If community nurses have been visiting, call them too: they can verify the death. Outside surgery hours, contact the on-call doctor.
If the death was unexpected
Call 999 straight away and explain what has happened. The police will also be told, because the coroner needs to know.

Sources: NHS: when to call 999 · NHS: when to use 111 · Sussex Community NHS Foundation Trust · nidirect: when someone dies at home

Sources

Further reading from the library

346.05guide

Lasting Power of Attorney

It's important to consider Power of Attorney when living with a terminal illness. It allows you to appoint someone you trust to handle your affairs.

Marie CuriecharityUKVerified 27 Sept 2026
346.05guide

Making a decision for someone else

The law in England and Wales says if someone cannot make a decision for themselves the decision needs to be made by someone else. The person making the decision must act in the person's best interests.

Compassion in DyingcharityEngland · WalesVerified 27 Sept 2026
362.175organisation

Marie Curie: Planning for end of life

Index page: all of Marie Curie's guidance on planning ahead. Why planning ahead is important. Information on making a Will, decisions about the care you'd like to receive if you're ill, and financial plans.

Marie CuriecharityUKVerified 27 Sept 2026
362.175organisation

Compassion in Dying: How we can help

Index page: all of Compassion in Dying's help with planning ahead. We support you to make informed choices, start honest conversations about death and dying with your loved ones, and record and revisit your wishes whenever you want, for free.

Compassion in DyingcharityEngland · WalesVerified 27 Sept 2026
362.175guide

Living will (advance decision)

A living will is a form which lets you refuse any medical treatments that you do not want to be given in the future.

Compassion in DyingcharityEngland · WalesVerified 27 Sept 2026